Thursday, November 6, 2014

Decisions

After getting over the initial crushing blow that was the MRI results, I spent the day on the verge of tears and wanting to eat an entire pint of ice cream.  Then I read other PVNS suffers discussing the "just leave it" option.  Sure there is the possibility that just letting it grow in my knee will cause more damage and therefore causing me to need a full on knee replacement.  At 41 I need to consider the damage that the multiple surgeries I could face could cause even more damage and cause the PVNS to grow even faster.  It took 10 years for my PVNS to make me lose the ability to walk.  Could I wait another 10?  The answer is, maybe.  I have heard of others changing their lifestyles and going for 7 years managing pain and other effects.  I know my doctor will suggest a full open back and front synovectomy.  So I'm considering the leaving it alone option.  That being said I really need to stick with my initial concept of organic foods and NO ice cream.  I figure if I face major surgery then I need to consider timing and how it will effect my life.  My surgeon claims I could be on crutches for up to 6 months recovering from the type of surgery he suggested.  Also, the nerve damage doesn't sound fun.  Being immobile will be horribly depressing and will cause me to lose significant amounts of time to work and make an income.  Also, I won't consider chemo/radiation therapies or clinical trials.  I figure if I just leave it and find alternatives such as acupuncture and eating healthy I might be able to keep it from growing out of control.

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