Yes, the tell-tale sign that PVNS is creeping its way back into my knee joint is the shooting pain down my leg. From the top of my knee down the shin as if little men are repelling down my nerves. Other parts of my body feel like they are flaring up too. Odd attacks of pain in random places. I can see also the visual indicator that the knee appears to have some puffier areas than the left knee. And as I exercise or do simple things like go down the stairs I feel the pressure of my knee at times so intense that I have to slow down. I'm going to see the doctor on Monday.
I was able to do hot yoga classes for 2 months. This was 3 months post arthroscopic synovectomy. I started in September and did 10 classes before the end of October. But the last few classes were difficult and some of the positions I never was able to do completely. But I at least felt encouraged those weeks I could bend my knee easier and felt like I was physically able for a moment.
I think most of the time I feel very disabled. When I see my daughter running and leaping I think to myself, "if only I could do that". I don't dare. To have your knee lock up and potentially blow up like a pomelo is not worth the risk. It's very discouraging knowing you can't do some things and can only live vicariously through others to enjoy things I would dare not do.
As I type this the pains are shooting with more intensity in all directions around my knee. Even up my thigh. Sharp pangs leap off the part of my knee that I know is suffering from whatever the PVNS is doing in there. It feels like it's trying to eat my knee. It's very much like a throbbing sensation.
I've heard a bath does not help this plight. And adding Epsom salts makes it even worse. I'm not at the point where I desire relief because the pains are not constant. To treat them might not be to my benefit overall. So I will just continue to wait until Monday. The next step I'm sure will be another MRI.
Thursday, October 31, 2013
Monday, October 7, 2013
When will PVNS come back?
I've been suspecting that the PVNS is slowly creeping it's way back into my right knee.
Initially after my surgery on June 12 my recovery seemed to be going great. I was able to walk stairs again and do many activities I had to suspend because the tumors were preventing me from even bending my knee previous to the surgery. Ok, so I didn't stick to the diet. It's just too difficult when you have children in the house that demand food that is not on the paleo diet. So my experiment is not in effect as I initially wanted it to be.
Anyways, after the 3 weeks, maybe 4, I was doing some exercises where you stand against a wall and then slide down and back up. I was feeling really good about my recovery and went to almost 20 reps. My doctor said 10 at a time. I got to 18 and felt like the ligament in my knee tightened up so bad it took weeks to get the flexibility back.
Last month I started hot yoga. I still can't bend my knee to where I can do all of the positions but enough were I can participate. I still stand by my concept that exercise every day helps keep the knee in recovery and maintains the flexibility.
About a week and a half ago I felt something strange in my knee. As though I could literally feel something growing in there. I've been checking my knees for anything that feels foreign moving around in there. I can say that I am fairly certain that I do feel a very small mass in the place where my biggest tumor was located. But I'm sure I'm mostly just paranoid.
It will take much more time before I will know for certain that PVNS really is on its way back to making me miserable. I would like to think it was completely removed during surgery. Statistically that is highly unlikely. The last statistics that I saw out of 65 people with PVNS in their right knee, only 4 claimed to be free of PVNS after surgery.
So at this time I think I need to get on the acupuncture idea. I'm a little concerned about the cost but I can at least commit to once a month I think.
Initially after my surgery on June 12 my recovery seemed to be going great. I was able to walk stairs again and do many activities I had to suspend because the tumors were preventing me from even bending my knee previous to the surgery. Ok, so I didn't stick to the diet. It's just too difficult when you have children in the house that demand food that is not on the paleo diet. So my experiment is not in effect as I initially wanted it to be.
Anyways, after the 3 weeks, maybe 4, I was doing some exercises where you stand against a wall and then slide down and back up. I was feeling really good about my recovery and went to almost 20 reps. My doctor said 10 at a time. I got to 18 and felt like the ligament in my knee tightened up so bad it took weeks to get the flexibility back.
Last month I started hot yoga. I still can't bend my knee to where I can do all of the positions but enough were I can participate. I still stand by my concept that exercise every day helps keep the knee in recovery and maintains the flexibility.
About a week and a half ago I felt something strange in my knee. As though I could literally feel something growing in there. I've been checking my knees for anything that feels foreign moving around in there. I can say that I am fairly certain that I do feel a very small mass in the place where my biggest tumor was located. But I'm sure I'm mostly just paranoid.
It will take much more time before I will know for certain that PVNS really is on its way back to making me miserable. I would like to think it was completely removed during surgery. Statistically that is highly unlikely. The last statistics that I saw out of 65 people with PVNS in their right knee, only 4 claimed to be free of PVNS after surgery.
So at this time I think I need to get on the acupuncture idea. I'm a little concerned about the cost but I can at least commit to once a month I think.
Subscribe to:
Posts (Atom)