Today I saw the open surgery doctor guy who confirmed again that he will not be the guy to cut me open next. I was there for the MRI results that I have been anticipating for over a year. The results:
1. MRI findings most compatible with pigmented villonodular synovitis of the right knee with a small erosion at the posterior aspect of the lateral femoral codyle. Interval development of the new PVNS deposit at the superior aspect of Hoffa's fat pad since prior exam.
2. Moderate knee joint effusion.
3. Chondromalacia patella.
After Dr. D read this to me he explained, "But don't worry about that."
He also added that because none of the PVNS has broken through past the synovial lining that he wouldn't have to operate on me. I said, "Good, I don't ever want to see you again. At least not anytime soon." He agreed. But we looked at each other as though we knew this would not be the last encounter.
He kept saying, "Is there anything else I can do for you?",
emphasizing the "else". I was wondering if he wanted me to ask for
drugs or something. I don't know. What can he do?
He
told me he would refer me to the team that does the kind of surgery I
need. I was elated to be spending my time for an hour of my day to wait
in a room to be told what I knew that I was going to hear. "You need to
see someone else, you will be called in a few days". Oh yay.
Basically my prognosis boils down to having diffused PVNS in my right knee. It is still growing. It is causing inflamation and the slow destruction of my knee. And now I get to wait some more.
