Since being diagnosed 6 years ago I have learned that at my worst with my PVNS I'm still better off than I could be. It can always get worse. That idea alone motivates me to waste no time. To do the things that I wouldn't otherwise if I was in it bad with my PVNS. Things that most people take for granted. Walking a flight of stairs, walking a long distance, sitting for a long period of time, or any kind of traveling.
I had my last surgery a year and one month ago. So far I am doing great. I have moments when I think I'm having a recurrence but since my last surgery I have incorporated going to the gym 3 to 5 days a week where I ride a stationary bicycle for 25 minutes. I average about 5 miles or so. Or I go swim but I prefer the bicycle to keep the knee moving steadily and consistently. About 8 months ago I added in a five minute yoga stretch before the gym time. But now I'm up to 20 minutes of yoga before the gym. I do the yoga at home where I won't have an instructor shouting at me to bend my knee while I'm trying to breathe. I found an app that I use that has videos that I can choose the length of time as well as the level of difficulty. The yoga has become such an vital part of my day that I genuinely get anxious if I don't start my day with my yoga practice.
Last year I started booking vacations when I knew I could still walk around easily and without pain. I knew that if I didn't go on these trips I could suffer for future travels if I waited too long. Surgeries have been such a big part of planning that if I'm not planning a surgery I am planning a vacation. Through my travels, and even my surgeries, I have learned to be grateful for my mobility and abilities and work to accomplish all that I can while I can.
My fear is if I don't travel or keep moving I will become unable to do so. So I do everything I can for myself everyday. And I'm in the best shape of my life because of this mentality. And for that I'm actually thankful for my PVNS.
Very well expressed and informative blog. Good job!
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